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nabila husseni's picture
January 03, 2017
                    My name is Nabila Husseni, I’m 30 years old. I am a severe factor V hemophiliac...
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V4WChelsea's picture
November 28, 2018
Check out this webinar It's Genetic, Baby from the Hemophilia Federation of America (HFA). Genetic...
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Jen G.'s picture
by Jen G.
October 27, 2018
        I deliberately have not selected an image, to accompany my story, as it’s the images that...
Comments (2) Appreciates (6)
v4wModerator's picture
October 19, 2018
Did you know that approximately 50,000 women in Sweden have a bleeding disorder, but only about a...
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Katherine Tyson's picture
August 26, 2018
Hello everyone, I’m wondering is there is anyone else here from the UK? It would be great to get to...
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Taylor D Bentley's picture
August 02, 2018
My Story - (8/2/2018) Hello, I am Taylor Bentley and I live in a small town outside Atlanta. I am...
Comments (7) Appreciates (18)
Janine Achury's picture
July 30, 2018
  Since I can remember, I have been a bleeder.  It was even more difficult because I was born in...
Comments (1) Appreciates (24)
laura echandi's picture
July 15, 2018
Hola mi nombre es Laura Echandi y vivo en Los Ángeles, California. Soy madre de un adolescente con...
Comments (2) Appreciates (40)
Mayra's picture
by Mayra
July 12, 2018
I'm not going to lie, it's tough being a mom, handling a full time job and a bleeding disorder!   ...
Comments (2) Appreciates (18)
v4wModerator's picture
July 10, 2018
Read our Victory Spotlight Chapter Staff Honoree, Melissa Reike's Post: 'Story of My Diagnosis...
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angies.adventures's picture
June 30, 2018
Hey, I'm Angie! Here is my 1st vlog on living  with a bleeding disorder as a female! Women don't...
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Bridget Hunnewell's picture
June 11, 2018
Having my undergraduate degree in Psychology, and currently pursuing my Master's Degree in...
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Bridget Hunnewell's picture
June 07, 2018
I feel that over the past 23 years of my life, there's been a wide variety of thoughts and opinions...
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Bridget Hunnewell's picture
June 07, 2018
For me, having a bleeding disorder is something that I have grown to like about myself. Now for...
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Catherine's picture
June 01, 2018
Nobody else in my family had never heard of it, I was”My name is Catherine. I am 16. I have Von...
Comments (3) Appreciates (15)
... It Bloody Marked Me
Michelle Leona Cecil's picture
May 18, 2018
... It Bloody Marked Me Since 1998 I have been attending Camp Bold Eagle with the Hemophilia...
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World Hemophilia Day
V4WChelsea's picture
April 17, 2018
April 17, 2018 marks the 28th World Hemophilia Day. This year's focus is the importance of sharing...
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v4wModerator's picture
April 04, 2018
Posted on behalf of community member Jo Funderburk, Founder of Moms Like Her.  “Please be a boy,...
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Jacey Lynn Gonzalez's picture
March 07, 2018
Hi little one,  There is a bright and strong light inside of you. You just have to discover it. I...
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Jacey Lynn Gonzalez's picture
March 05, 2018
I was 16 years old the first time I stepped inside the United States Capitol Building. It was the...
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Red Tie Campaign
V4WChelsea's picture
March 01, 2018
It's Bleeding Disorders Awareness Month and the kick-off the 2018 Red Tie Campaign! The National...
Comments (1) Appreciates (53)
V4WChelsea's picture
February 28, 2018
The last day of February each year marks Rare Disease Day! The goal is to raise awareness with the...
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Family Emergency Kit Checklist
V4WChelsea's picture
February 15, 2018
HANDI's newly-revised its Family Emergency Kit Checklist is now available in PDF format! The...
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essential items to bring to the emergency room or hospital
V4WChelsea's picture
February 13, 2018
Emergency situations can arise at any time. If you have to go the emergency room or hospital, it's...
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Anonymous's picture
February 09, 2018
Greetings Bleeding Disorder Patients, I was diagnosed with VWD 16 years ago along with my three...
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V4WChelsea's picture
January 19, 2018
Myra Hunter,  emeritus professor of clinical health psychology at King’s College London and...
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V4WChelsea's picture
January 16, 2018
Is this the year of that promotion you've been eyeing for months now? Is this the year you start...
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V4WChelsea's picture
January 11, 2018
It's important to know your rights as an employee in the workplace and for employers to understand...
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V4WChelsea's picture
January 10, 2018
Mayo Clinic researchers show that having a hysterectomy and keeping both ovaries poses an increased...
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V4WChelsea's picture
January 05, 2018
A little encouragement, to start 2018 off right! Happy New Year! 
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V4WChelsea's picture
December 05, 2017
Something had to be done. Every time Ziva Mann would prep to give her son Shai an infusion he would...
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Birth-Control
V4WChelsea's picture
October 30, 2017
Birth control is an important issue for women and girls in the bleeding disorders community. For...
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V4WChelsea's picture
October 20, 2017
Every year, the third Friday of October marks National Mammography Day as a part of National Breast...
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V4WChelsea's picture
October 13, 2017
NHF Medical and Scientific Advisory Council (MASAC) met during NHF's 69th Annual Meeting on August...
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V4WChelsea's picture
October 11, 2017
In 2012 the United Nations marked October 11 as the International Day of the Girl. Today is the day...
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V4WChelsea's picture
September 29, 2017
Happy belated National Women’s Health and Fitness Day! In today’s day and age fitness and...
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V4WChelsea's picture
September 25, 2017
On Wednesday, it’s National Women’s Health and Fitness Day and in honor of this special day I’ll be...
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V4WChelsea's picture
August 17, 2017
This guide includes information adapted from the Hemaware article “Transitioning through Menopause...
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V4WChelsea's picture
August 15, 2017
 Hormone therapy—birth control—is widely prescribed to women with bleeding disorders to control...
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V4WChelsea's picture
August 11, 2017
As a woman with a bleeding disorder, your care is multifaceted and usually involves multiple...
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V4WChelsea's picture
August 02, 2017
Here are a few tips for having the ‘first period talk’ that's conversational, informative and...
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V4WChelsea's picture
August 02, 2017
Most women would agree that pregnancy is an exciting time. On the other hand, most women would  ...
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V4WChelsea's picture
August 01, 2017
Carving out time to exercise can sometimes seem impossible; especially when it feels like 24 hours...
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NOW Conference Registration
Arizona Hemophilia Association's picture
June 16, 2017
Don't miss out on this exciting opportunity to be part of the 2017-2018 Bi-Annual NOW Conferences,...
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V4WChelsea's picture
May 22, 2017
NHF has created Make Your Move fitness videos just for you to get moving as summer fast approaches...
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V4WChelsea's picture
May 18, 2017
If you have a bleeding disorder and are questioning whether you should be physically active, the...
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V4WChelsea's picture
May 12, 2017
In honor of Mother's Day I wanted to write a short poem thanking all the mothers, grandmothers and...
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V4WChelsea's picture
May 12, 2017
The World Federation of Hemophilia dedicated World Hemophilia Day 2017 to supporting the millions...
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V4WChelsea's picture
April 17, 2017
Hey girl hey!   It’s been about a year since I began my journey. Sooo the whole point is for us to...
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V4WChelsea's picture
April 17, 2017
Today April 17th on World Hemophilia Day we will continue to raise awareness and support for women...
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V4WChelsea's picture
March 31, 2017
As Bleeding Disorders Awareness Month comes to a close, I wanted to take a minute to make you aware...
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V4WChelsea's picture
March 31, 2017
Although Bleeding Disorders Awareness Month is coming to a close, supporting women and girls with...
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V4WChelsea's picture
March 21, 2017
As March is Women’s History Month I thought it’d be nice to highlight the National Women’s Hall of...
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V4WChelsea's picture
March 15, 2017
Tune in this Thursday for the latest in NHF’s Make Your Move Physical Therapy Webinar Series! It’s...
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V4WChelsea's picture
March 15, 2017
 Reflecting on my time spent at Washington Days,  I thought about  the different ways in which we...
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V4WChelsea's picture
March 09, 2017
As I gear up for my first Washington Days, I took a second to reflect on my own communication...
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Victory
V4WChelsea's picture
March 08, 2017
“International Women’s Day is a global day celebrating the social, economic, cultural and political...
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V4WChelsea's picture
February 23, 2017
The topic of menstruation is often taboo among men and women. Even now as a young adult, my period...
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V4WChelsea's picture
February 21, 2017
Many of us may remember the infamous ‘Birds and the Bees’ class (or maybe you just attended it!)....
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V4WChelsea's picture
February 16, 2017
February marks American Heart Month! Just as many people inaccurately think only men can get...
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V4WChelsea's picture
February 14, 2017
Roses are red, violets are blue, Valentine’s Day is here and NHF cares for you! Have you just...
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V4WCorinne's picture
January 24, 2017
This past weekend millions of women gathered to make their voices heard.  The new Congress and...
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nabila husseni's picture
January 13, 2017
Have you ever noticed how often the challenges we face also contains a blessing in disguise? If not...
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V4WChelsea's picture
January 12, 2017
If you haven't heard already, many states have something called the  "tampon tax," where tampons...
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Menstruation-Calendar
V4WChelsea's picture
January 09, 2017
In March 2016, UK social enterprise company, Coexist announced they were creating a “period policy...
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Fitness
V4WChelsea's picture
January 05, 2017
Another New Year is upon us which for many of us, means the annual 'get active, stay active' new...
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V4WChelsea's picture
January 03, 2017
Happy New Year ladies! I hope everyone had an awesome holiday season! Well now that we're back in...
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Memory-Lane
V4WChelsea's picture
December 22, 2016
The holidays are just around the corner, and I am beyond excited to get back to my family and...
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Questions
V4WChelsea's picture
December 21, 2016
 Von Willebrand Disease: the Under-the-Radar Bleeding Disorder discusses how a young woman of 19...
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V4WChelsea's picture
December 13, 2016
Check out this engaging music video which shows the power of youth, especially young women,...
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V4WCorinne's picture
December 12, 2016
Hello V4W Community!   Greetings from the NHF Education Team! After lots of planning and input from...
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V4WChelsea's picture
December 08, 2016
On Tuesday, nurses, executive directors, volunteers, and program managers from all over the United...
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Kate Nammacher's picture
December 08, 2016
Read this interesting article and would love to hear perspectives on this from all of you women in...
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Medical-Care
Marlee Whetten's picture
December 05, 2016
Hey Ladies, At annual meeting this past July I moderated the rap session for women with bleeding...
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Victory
V4WChelsea's picture
November 28, 2016
As women with bleeding disorders know very well, all periods are not created equal! Having said...
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v4wModerator's picture
July 25, 2016
NHF had a full line up of sessions for women with bleeding disorders. Here are some of the...
Comments (1) Appreciates (89)
v4wModerator's picture
July 25, 2016
The focus was research at the Thursday afternoon session, Making Progress: New Initiatives for...
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v4wModerator's picture
July 25, 2016
If your first session at NHF’s 68th Annual Meeting was the VWD Precon July 21, you got a healthy...
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v4wModerator's picture
July 25, 2016
Cynthia Gauger, MD, pediatric hematologist at the Nemours Children’s Clinic in Jacksonville,...
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v4wModerator's picture
July 23, 2016
Artwork created by participants in the Art Therapy workshop of Annual Meeting 2016!
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v4wModerator's picture
July 23, 2016
Artwork created by a participant in the Art Therapy Workshop at Annual Meeting 2016!
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v4wModerator's picture
July 23, 2016
Artwork created by a participant in the Art Therapy workshop at Annual Meeting 2016!
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v4wModerator's picture
July 23, 2016
Drawings of superheroes created by women in the Art Therapy workshop at Annual Meeting
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v4wModerator's picture
July 23, 2016
Superheroes created by women at the Art Therapy workshop during Annual Meeting 2016! 
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v4wModerator's picture
July 23, 2016
"If you could be a superhero who would you be? What superpower would you have?"  Licensed...
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v4wModerator's picture
July 22, 2016
Yesterday, July 21, 2016 kicked off the National Hemophilia Foundation's 68th Annual Meeting! Yayyy...
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Steps for Living's picture
July 08, 2016
For more information and resources on workplace issues and living with a bleeding disorder, check...
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Steps for Living's picture
July 08, 2016
For more information on VWD and other bleeding disorders, please visit Steps for Living!
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agregory's picture
July 05, 2016
"Grief is the rope burns left behind when what we have held most dearly is pulled out of reach,...
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ablong14's picture
June 06, 2016
Growing up, I thought everyone’s father infused. By the age of 7, I knew that was not the case....
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Victory Spotlight V4W's Featured Woman
Melissa Reifke

We are pleased to introduce our newest Victory Spotlight honoree Melissa Reifke, Women’s Program Coordinator of the Lone Star Chapter of NHF and the Women’s Retreat Director of Empowering Women with Bleeding and Clotting Disorders. The...Read More