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Make an impact, share your story! Join Community Voices in Research to make a difference for women'…
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Before working with the National Bleeding Disorders Foundation, I worked in reproductive healthcare…
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BDC 2024 is here! Hear from one of our speakers on what she is most looking forward to this year at…
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BDC 2024 is coming up around the corner! NBDF’s Bleeding Disorders Conference (BDC) will be taking…
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As we know, health looks different for everyone. Today’s topic is inspired by a WGPPM session at…
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As a person with a bleeding disorder, attending your yearly appointment with your HTC can be…
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To better understand Journey to Know, let’s start by first talking about Better You Know (BYK).…
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Bleeding Disorders Awareness Month (BDAM) takes place every March and it calls attention to the…
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Anonymous's picture
Experts Answer:

Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk of life-threatening bleeding is quite high, and many having intracranial hemorrhages, often early in life. Prophylaxis is the only true way to prevent significant joint bleeds. You can discuss with your local HTC some pain control methods including selective COX-2 inhibitors like Celebrex, as there are some side effects to consider. Additionally you should discuss potential alternative therapies (discuss with your local HTC to ensure no anti-platelet effects) depending on your state's laws. Strategies of isometric exercise techniques that your local PT can discuss such as yoga and core exercises to ensure the muscles around the joints are strong. Also use of Kinesiology tape (you have likely seen NBA players and volleyball players using it during games) may be helpful and can be used by your local PT.  

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