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Taylor D Bentley's picture
August 02, 2018
My Story - (8/2/2018) Hello, I am Taylor Bentley and I live in a small town outside Atlanta. I am...
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Janine Achury's picture
July 30, 2018
  Since I can remember, I have been a bleeder.  It was even more difficult because I was born in...
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laura echandi's picture
July 15, 2018
Hola mi nombre es Laura Echandi y vivo en Los Ángeles, California. Soy madre de un adolescente con...
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Mayra's picture
by Mayra
July 12, 2018
I'm not going to lie, it's tough being a mom, handling a full time job and a bleeding disorder!   ...
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v4wModerator's picture
July 10, 2018
Read our Victory Spotlight Chapter Staff Honoree, Melissa Reike's Post: 'Story of My Diagnosis...
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angies.adventures's picture
June 30, 2018
Hey, I'm Angie! Here is my 1st vlog on living  with a bleeding disorder as a female! Women don't...
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Bridget Hunnewell's picture
June 11, 2018
Having my undergraduate degree in Psychology, and currently pursuing my Master's Degree in...
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Bridget Hunnewell's picture
June 07, 2018
I feel that over the past 23 years of my life, there's been a wide variety of thoughts and opinions...
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Dr. Expert's picture
Experts Answer:

The pathogenic variant does not change over time but in VWD there is significant expressivity and incomplete penetrance (how much the mutation affects VWD production or clearance of it from the body). In type 1 VWD for example about 60% of the VWF level is explained by blood type and genetic mutation and the other 40% is explained by unknown other changes in DNA outside of the VWF gene and environmental factors like sex hormones, thyroid hormone, age, stress and other medical illnesses. We see this with differences in bleeding patterns with the same mutation in siblings and even slightly different levels. With any complex disorder such hypertension, diabetes and even VWD there can be significant differences particularly in those with milder disease. We see this in clinics with sibling with very different bleeding patterns and bleeding differences between mother and child.   

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Victory Spotlight V4W's Featured Woman
Melissa Reifke

We are pleased to introduce our newest Victory Spotlight honoree Melissa Reifke, Women’s Program Coordinator of the Lone Star Chapter of NHF and the Women’s Retreat Director of Empowering Women with Bleeding and Clotting Disorders. The...Read More