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nabila husseni's picture
January 13, 2017
Have you ever noticed how often the challenges we face also contains a blessing in disguise? If not...
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nabila husseni's picture
January 03, 2017
                    My name is Nabila Husseni, I’m 30 years old. I am a severe factor V hemophiliac...
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Jen G.'s picture
by Jen G.
October 27, 2018
        I deliberately have not selected an image, to accompany my story, as it’s the images that...
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v4wModerator's picture
October 19, 2018
Did you know that approximately 50,000 women in Sweden have a bleeding disorder, but only about a...
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Katherine Tyson's picture
August 26, 2018
Hello everyone, I’m wondering is there is anyone else here from the UK? It would be great to get to...
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Taylor D Bentley's picture
August 02, 2018
My Story - (8/2/2018) Hello, I am Taylor Bentley and I live in a small town outside Atlanta. I am...
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Janine Achury's picture
July 30, 2018
  Since I can remember, I have been a bleeder.  It was even more difficult because I was born in...
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laura echandi's picture
July 15, 2018
Hola mi nombre es Laura Echandi y vivo en Los Ángeles, California. Soy madre de un adolescente con...
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Gush-N-Hush's picture
Experts Answer:

Osteoporosis is defined by a severe reduction in bone mineral density (BMD) predisposing to fractures and additional morbidity. In patients with hemophilia, there is certainly data to support the association with osteoporosis, but less is known about rare bleeding disorders and von Willebrand disease. Treatment for osteoporosis is the same as with patients without a bleeding disorder and commonly used, at least in the VWD and hemophilia population. There is no contraindication to use of these bisphosphonates for treatment of osteoporosis in bleeding disorder patients.  

- Dr. Expert

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Victory Spotlight V4W's Featured Woman
Melissa Reifke

We are pleased to introduce our newest Victory Spotlight honoree Melissa Reifke, Women’s Program Coordinator of the Lone Star Chapter of NHF and the Women’s Retreat Director of Empowering Women with Bleeding and Clotting Disorders. The...Read More