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October 15, 2019
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah  Caring for an...
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September 16, 2019
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah  Body image is a...
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September 10, 2019
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah  Transitioning into...
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May 03, 2019
When apart of a blended family it is important to plan ahead, educate yourself and agree on...
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April 18, 2019
Storybooth is changing the way youth share their truths through storytelling. Storybooth created a...
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April 02, 2019
April 2 marks Equal Pay Day in the United States. This symbolic day represents how far into a new...
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March 29, 2019
  This Women's History Month and Bleeding Disorders Awareness month we honor five female...
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March 15, 2019
Posted on behalf of community member Mary Ann Massolio, Hematology/Oncology Social Worker, Tampa FL...
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Anonymous's picture
Experts Answer:

Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk of life-threatening bleeding is quite high, and many having intracranial hemorrhages, often early in life. Prophylaxis is the only true way to prevent significant joint bleeds. You can discuss with your local HTC some pain control methods including selective COX-2 inhibitors like Celebrex, as there are some side effects to consider. Additionally you should discuss potential alternative therapies (discuss with your local HTC to ensure no anti-platelet effects) depending on your state's laws. Strategies of isometric exercise techniques that your local PT can discuss such as yoga and core exercises to ensure the muscles around the joints are strong. Also use of Kinesiology tape (you have likely seen NBA players and volleyball players using it during games) may be helpful and can be used by your local PT.  

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V4W's Featured Woman

The Victory Spotlight is a woman who has demonstrated her commitment to making her voice heard on behalf of women and girls with bleeding disorders through education, advocacy, mentoring and service. She represents and celebrates the potential of...Read More