Welcome to Victory For Women

Welcome to Victory For Women

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Bridget Hunnewell's picture
June 07, 2018
I feel that over the past 23 years of my life, there's been a wide variety of thoughts and opinions...
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Bridget Hunnewell's picture
June 07, 2018
For me, having a bleeding disorder is something that I have grown to like about myself. Now for...
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Catherine's picture
June 01, 2018
Nobody else in my family had never heard of it, I was”My name is Catherine. I am 16. I have Von...
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... It Bloody Marked Me
Michelle Leona Cecil's picture
May 18, 2018
... It Bloody Marked Me Since 1998 I have been attending Camp Bold Eagle with the Hemophilia...
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World Hemophilia Day
V4WChelsea's picture
April 17, 2018
April 17, 2018 marks the 28th World Hemophilia Day. This year's focus is the importance of sharing...
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v4wModerator's picture
April 04, 2018
Posted on behalf of community member Jo Funderburk, Founder of Moms Like Her.  “Please be a boy,...
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Jacey Lynn Gonzalez's picture
March 07, 2018
Hi little one,  There is a bright and strong light inside of you. You just have to discover it. I...
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Jacey Lynn Gonzalez's picture
March 05, 2018
I was 16 years old the first time I stepped inside the United States Capitol Building. It was the...
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Dr. Expert's picture
Experts Answer:

The pathogenic variant does not change over time but in VWD there is significant expressivity and incomplete penetrance (how much the mutation affects VWD production or clearance of it from the body). In type 1 VWD for example about 60% of the VWF level is explained by blood type and genetic mutation and the other 40% is explained by unknown other changes in DNA outside of the VWF gene and environmental factors like sex hormones, thyroid hormone, age, stress and other medical illnesses. We see this with differences in bleeding patterns with the same mutation in siblings and even slightly different levels. With any complex disorder such hypertension, diabetes and even VWD there can be significant differences particularly in those with milder disease. We see this in clinics with sibling with very different bleeding patterns and bleeding differences between mother and child.   

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Victory for Women V4W's Featured Woman

The Victory Spotlight is a woman who has demonstrated her commitment to making her voice heard on behalf of women and girls with bleeding disorders through education, advocacy, mentoring and service. She represents and celebrates the potential of...Read More