Welcome to Victory For Women

Welcome to Victory For Women

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nabila husseni's picture
January 13, 2017
Have you ever noticed how often the challenges we face also contains a blessing in disguise? If not...
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nabila husseni's picture
January 03, 2017
                    My name is Nabila Husseni, I’m 30 years old. I am a severe factor V hemophiliac...
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v4wModerator's picture
October 19, 2018
Did you know that approximately 50,000 women in Sweden have a bleeding disorder, but only about a...
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Katherine Tyson's picture
August 26, 2018
Hello everyone, I’m wondering is there is anyone else here from the UK? It would be great to get to...
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Taylor D Bentley's picture
August 02, 2018
My Story - (8/2/2018) Hello, I am Taylor Bentley and I live in a small town outside Atlanta. I am...
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Janine Achury's picture
July 30, 2018
  Since I can remember, I have been a bleeder.  It was even more difficult because I was born in...
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laura echandi's picture
July 15, 2018
Hola mi nombre es Laura Echandi y vivo en Los Ángeles, California. Soy madre de un adolescente con...
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Mayra's picture
by Mayra
July 12, 2018
I'm not going to lie, it's tough being a mom, handling a full time job and a bleeding disorder!   ...
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Dr. Expert's picture
Experts Answer:

The pathogenic variant does not change over time but in VWD there is significant expressivity and incomplete penetrance (how much the mutation affects VWD production or clearance of it from the body). In type 1 VWD for example about 60% of the VWF level is explained by blood type and genetic mutation and the other 40% is explained by unknown other changes in DNA outside of the VWF gene and environmental factors like sex hormones, thyroid hormone, age, stress and other medical illnesses. We see this with differences in bleeding patterns with the same mutation in siblings and even slightly different levels. With any complex disorder such hypertension, diabetes and even VWD there can be significant differences particularly in those with milder disease. We see this in clinics with sibling with very different bleeding patterns and bleeding differences between mother and child.   

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Victory Spotlight V4W's Featured Woman
Melissa Reifke

We are pleased to introduce our newest Victory Spotlight honoree Melissa Reifke, Women’s Program Coordinator of the Lone Star Chapter of NHF and the Women’s Retreat Director of Empowering Women with Bleeding and Clotting Disorders. The...Read More