By v4wModerator
BDC 2024 is coming up around the corner! NBDF’s Bleeding Disorders Conference (BDC) will be taking…
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By v4wModerator
As we know, health looks different for everyone. Today’s topic is inspired by a WGPPM session at…
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By v4wModerator
As a person with a bleeding disorder, attending your yearly appointment with your HTC can be…
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By v4wModerator
To better understand Journey to Know, let’s start by first talking about Better You Know (BYK).…
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By v4wModerator
Bleeding Disorders Awareness Month (BDAM) takes place every March and it calls attention to the…
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By v4wModerator
As I started my college journey, I found myself 16 hours away from home. Little did I know that by…
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By v4wModerator
Happy New Year!
Do you ever have those routine health check-ups that you’ve been pushing off for…
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By v4wModerator
Earlier this year, I shared a bit about our WGPPM Summit, hosted in May. We’re now excited to share…
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By v4wModerator
Have you checked out Victory for Women’s Resource tab? This section of the website highlights some…
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By v4wModerator
*Trigger Warning: This article includes discussion around topics such as domestic violence,…
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By Anonymous
Growing up, I was known as "the nosebleed girl." For several years, I suffered nosebleeds…
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By v4wModerator
The U.S. Food and Drug Administration (FDA) has approved Opill (norgestrel), the first daily oral…
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By v4wModerator
Destigmatizing periods isn’t all on women! Men and people who don’t menstruate can, and should, be…
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By v4wModerator
BDC 2023 is here! NHF’s Annual Bleeding Disorders Conference (BDC) celebrates 75 years of NHF this…
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By v4wModerator
Around 25% of women, girls, and people who have or had the potential to menstruate (WGPPM) in the…
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By v4wModerator
NHF is pleased to share the success of our first ever Women, Girls, and People with the Potential…
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By v4wModerator
Sustainability is something that is on our minds constantly, from finding eco-friendly alternatives…
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By v4wModerator
Welcome to Mental Health Awareness Month!
This month is dedicated to raising awareness on mental…
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By v4wModerator
*Trigger Warning: This article includes discussion around topics such as sexual assault, harassment…
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By v4wModerator
Happy Bleeding Disorders Awareness Month (BDAM)! Check out ways you can join the conversation for…
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By v4wModerator
Happy New Year, everyone – welcome to 2023! I hope you enjoyed your holiday season, and that this…
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By v4wModerator
The holiday season arrived before we even knew it! No matter what holiday you celebrate, if any,…
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By v4wModerator
In these past few months, the landscape of women’s health care has considerably shifted, leaving…
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By v4wModerator
Have you ever wondered how professional athletes maintain their periods while competing? While…
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By v4wModerator
*Trigger Warning: This article includes discussion around topics such as domestic violence,…
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By v4wModerator
Reproductive health is such an important topic in the community of women with bleeding disorders.…
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By v4wModerator
Hear from Patti Williford about her journey as a woman with a bleeding disorder!
https://gather.…
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By v4wModerator
We’re more than halfway past the year and BDC 2022 is just around the corner! NHF’s 74th Annual…
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By v4wModerator
A couple months ago, we talked a bit about the great strides Michigan is making by repealing the…
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By v4wModerator
Welcome to Mental Health Awareness Month!
This month is dedicated to raising awareness on mental…
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By v4wModerator
*Trigger Warning: This article includes discussion around topics such as sexual assault, harassment…
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By v4wModerator
Bleeding Disorders Awareness Month (BDAM) takes place every March and is an opportunity for anyone…
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By Anonymous
When I was 13, my whole world changed. What should have come as a relief after waiting for “mine”…
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By v4wModerator
Looking for a quick explainer video on how a bleeding disorder could affect your menstrual cycle?…
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By v4wModerator
Hi everyone – Happy February and Happy Black History Month! Today I want to add to the “…
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By v4wModerator
Happy New Year! I hope everyone had a wonderful holiday season and welcomed in the new year with…
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By v4wModerator
The holiday season is finally upon us! No matter what holiday you celebrate, if any, there is…
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By v4wModerator
Earlier this month, Governor Gretchen Whitmer, of Michigan, took a stand against period…
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By v4wModerator
Hi all! Today I want to share a little bit about an inspirational woman that I look up to, named…
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By v4wModerator
Are you looking to deepen your engagement in the women with bleeding disorders community and…
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By v4wModerator
Are you looking for a new resource aimed at women with bleeding disorders? Tune into BloodStream…
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By v4wModerator
Do you know where to find your nearest clinic for women and girls with bleeding disorders? The…
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By v4wModerator
How does eradicating period poverty and ending period stigma contribute to gender equality? Find…
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By v4wModerator
NHF’s 2021 Bleeding Disorders Conference is around the corner! This will be NHF’s 73rd annual BDC,…
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By v4wModerator
Hi all!
Hope everyone is doing well and enjoying the sunshine, no matter where in the world you…
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By v4wModerator
There are many “taboo” words we often tiptoe around when discussing women with bleeding disorders…
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By v4wModerator
Hi all! Happy Wednesday. Just a reminder that the Wednesday Webinar addressing the new VWD…
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By v4wModerator
Von Willebrand Disease commonly known as VWD is the most inherited bleeding disorder that effects…
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By v4wModerator
Living during a pandemic has posed many challenges for individuals and their sense of normalcy. We…
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By v4wModerator
Caregiver stress is a topic that has been recognized within the bleeding disorders community for…
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By v4wModerator
Hello V4W users! We know it has been a while since you have heard from us and we would like to…
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By v4wModerator
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah
Caring for an…
motivation
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By v4wModerator
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah
Body image is…
education
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By v4wModerator
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah
Transitioning…
women's health
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By V4WChelsea
When apart of a blended family it is important to plan ahead, educate yourself and agree on…
parenting
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By V4WChelsea
Storybooth is changing the way youth share their truths through storytelling. Storybooth created a…
periods
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By V4WChelsea
April 2 marks Equal Pay Day in the United States. This symbolic day represents how far into a new…
empowerment
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By V4WChelsea
This Women's History Month and Bleeding Disorders Awareness month we honor five female…
empowerment
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By v4wModerator
Posted on behalf of community member Mary Ann Massolio, Hematology/Oncology Social Worker, Tampa FL…
aging
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By Anonymous
Being a parent of a child/children whom has a bleeding disorder is hard. However, being a…
parenting
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By V4WChelsea
According to the United States Center for Disease Control and Prevention ovarian cysts are common…
reproductive health
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By angies.adventures
Happy New Year!!!
Lets Start off this New year Right!!
Don't Forget to Let me Know what you want…
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By V4WChelsea
Check out this webinar It's Genetic, Baby from the Hemophilia Federation of America (HFA). Genetic…
family planning
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By Jen G.
I deliberately have not selected an image, to accompany my story,…
Bleeding Disorders
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By v4wModerator
Did you know that approximately 50,000 women in Sweden have a bleeding disorder, but only about a…
bleeding disorders
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By Katherine Tyson
Hello everyone,
I’m wondering is there is anyone else here from the UK? It would be great to get…
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By Taylor D Bentley
My Story - (8/2/2018)
Hello, I am Taylor Bentley and I live in a small town outside Atlanta. I am…
Rare Bleeding Disorder
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By Janine Achury
Since I can remember, I have been a bleeder. It was even more difficult because I was…
VWD
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By laura echandi
Hola mi nombre es Laura Echandi y vivo en Los Ángeles, California. Soy madre de un adolescente con…
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By Mayra
I'm not going to lie, it's tough being a mom, handling a full time job and a bleeding disorder!…
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By v4wModerator
Read our Victory Spotlight Chapter Staff Honoree, Melissa Reike's Post: 'Story of My…
empowerment
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By angies.adventures
Hey, I'm Angie!
Here is my 1st vlog on living with a bleeding disorder as a female! Women…
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By Bridget Hunnewell
Having my undergraduate degree in Psychology, and currently pursuing my Master's Degree in…
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By Bridget Hunnewell
I feel that over the past 23 years of my life, there's been a wide variety of thoughts and opinions…
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By Bridget Hunnewell
For me, having a bleeding disorder is something that I have grown to like about myself. Now…
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By Catherine
Nobody else in my family had never heard of it, I was”My name is Catherine. I am 16. I…
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By Michelle Leona Cecil
... It Bloody Marked Me
Since 1998 I have been attending Camp Bold Eagle with the Hemophilia…
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By V4WChelsea
April 17, 2018 marks the 28th World Hemophilia Day. This year's focus is the importance of…
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By v4wModerator
Posted on behalf of community member Jo Funderburk, Founder of Moms Like Her.
“Please be a…
moms
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By Jacey Lynn Gonzalez
Hi little one,
There is a bright and strong light inside of you. You just have to discover…
empowerment
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By Jacey Lynn Gonzalez
I was 16 years old the first time I stepped inside the United States Capitol Building. It was the…
women's health
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By V4WChelsea
It's Bleeding Disorders Awareness Month and the kick-off the 2018 Red Tie Campaign! The National…
Bleeding Disorders
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By V4WChelsea
The last day of February each year marks Rare Disease Day! The goal is to raise awareness with the…
Bleeding Disorders
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By V4WChelsea
HANDI's newly-revised its Family Emergency Kit Checklist is now available in PDF format! The…
education
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By V4WChelsea
Emergency situations can arise at any time. If you have to go the emergency room or hospital, it's…
education
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By Anonymous
Greetings Bleeding Disorder Patients,
I was diagnosed with VWD 16 years ago along with my three…
VWD
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By V4WChelsea
Myra Hunter, emeritus professor of clinical health psychology at King’s College London and…
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By V4WChelsea
Is this the year of that promotion you've been eyeing for months now? Is this the year you start…
talents
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By V4WChelsea
It's important to know your rights as an employee in the workplace and for employers to understand…
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By V4WChelsea
Mayo Clinic researchers show that having a hysterectomy and keeping both ovaries poses an…
Bleeding Disorders
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By V4WChelsea
A little encouragement, to start 2018 off right! Happy New Year!
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By V4WChelsea
Something had to be done. Every time Ziva Mann would prep to give her son Shai an infusion he would…
moms
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By V4WChelsea
Birth control is an important issue for women and girls in the bleeding disorders community. For…
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By V4WChelsea
Every year, the third Friday of October marks National Mammography Day as a part of National Breast…
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By V4WChelsea
NHF Medical and Scientific Advisory Council (MASAC) met during NHF's 69th Annual Meeting on August…
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By V4WChelsea
In 2012 the United Nations marked October 11 as the International Day of the Girl. Today is the day…
girls
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By V4WChelsea
Happy belated National Women’s Health and Fitness Day! In today’s day and age fitness and…
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By V4WChelsea
On Wednesday, it’s National Women’s Health and Fitness Day and in honor of this special day I’ll be…
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By V4WChelsea
This guide includes information adapted from the Hemaware article “Transitioning through Menopause…
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By V4WChelsea
Hormone therapy—birth control—is widely prescribed to women with bleeding disorders to…
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By V4WChelsea
As a woman with a bleeding disorder, your care is multifaceted and usually involves multiple…
Bleeding Disorders
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By V4WChelsea
Here are a few tips for having the ‘first period talk’ that's conversational, informative and…
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By V4WChelsea
Most women would agree that pregnancy is an exciting time. On the other hand, most women would…
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By V4WChelsea
Carving out time to exercise can sometimes seem impossible; especially when it feels like 24 hours…
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By Arizona Hemophilia Association
Don't miss out on this exciting opportunity to be part of the 2017-2018 Bi-Annual NOW Conferences,…
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By V4WChelsea
NHF has created Make Your Move fitness videos just for you to get moving as summer fast approaches…
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By V4WChelsea
If you have a bleeding disorder and are questioning whether you should be physically active, the…
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By V4WChelsea
In honor of Mother's Day I wanted to write a short poem thanking all the mothers, grandmothers and…
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By V4WChelsea
The World Federation of Hemophilia dedicated World Hemophilia Day 2017 to supporting the millions…
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By V4WChelsea
Hey girl hey!
It’s been about a year since I began my journey. Sooo the whole point is…
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By V4WChelsea
Today April 17th on World Hemophilia Day we will continue to raise awareness and support…
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By V4WChelsea
As Bleeding Disorders Awareness Month comes to a close, I wanted to take a minute to make you aware…
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By V4WChelsea
Although Bleeding Disorders Awareness Month is coming to a close, supporting women and girls with…
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By V4WChelsea
As March is Women’s History Month I thought it’d be nice to highlight the National Women’s Hall of…
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By V4WChelsea
Tune in this Thursday for the latest in NHF’s Make Your Move Physical Therapy Webinar Series! It’s…
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By V4WChelsea
Reflecting on my time spent at Washington Days, I thought about the…
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By V4WChelsea
As I gear up for my first Washington Days, I took a second to reflect on my own communication…
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By V4WChelsea
“International Women’s Day is a global day celebrating the social, economic, cultural and political…
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By V4WChelsea
The topic of menstruation is often taboo among men and women. Even now as a young adult, my period…
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By V4WChelsea
Many of us may remember the infamous ‘Birds and the Bees’ class (or maybe you just attended it!).…
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By V4WChelsea
February marks American Heart Month! Just as many people inaccurately think only men can get…
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By V4WChelsea
Roses are red, violets are blue, Valentine’s Day is here and NHF cares for you! Have you just…
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By V4WCorinne
This past weekend millions of women gathered to make their voices heard. The new Congress and…
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By nabila husseni
Have you ever noticed how often the challenges we face also contains a blessing in disguise? If not…
Factor Deficiency
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By V4WChelsea
If you haven't heard already, many states have something called the "tampon tax,"…
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By V4WChelsea
In March 2016, UK social enterprise company, Coexist announced they were creating a “period policy…
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By V4WChelsea
Another New Year is upon us which for many of us, means the annual 'get active, stay active' new…
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By V4WChelsea
Happy New Year ladies! I hope everyone had an awesome holiday season! Well now that we're back…
Bleeding Disorders
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By V4WChelsea
The holidays are just around the corner, and I am beyond excited to get back to my family and…
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By V4WChelsea
Von Willebrand Disease: the Under-the-Radar Bleeding Disorder discusses how a young…
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By V4WChelsea
Check out this engaging music video which shows the power of youth, especially young women,…
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By V4WCorinne
Hello V4W Community!
Greetings from the NHF Education Team! After lots of planning and…
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By V4WChelsea
On Tuesday, nurses, executive directors, volunteers, and program managers from all over the…
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By Kate Nammacher
Read this interesting article and would love to hear perspectives on this from all of you women in…
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By Marlee Whetten
Hey Ladies,
At annual meeting this past July I moderated the rap session for women with bleeding…
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By V4WChelsea
As women with bleeding disorders know very well, all periods are not created equal! Having said…
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By v4wModerator
NHF had a full line up of sessions for women with bleeding disorders. Here are some of the…
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By v4wModerator
The focus was research at the Thursday afternoon session, Making Progress: New Initiatives for…
women's health
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By v4wModerator
If your first session at NHF’s 68th Annual Meeting was the VWD Precon July 21, you got a healthy…
VWD
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By v4wModerator
Cynthia Gauger, MD, pediatric hematologist at the Nemours Children’s Clinic in Jacksonville,…
VWD
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By v4wModerator
Artwork created by participants in the Art Therapy workshop of Annual Meeting 2016!
empowerment
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By v4wModerator
Artwork created by a participant in the Art Therapy Workshop at Annual Meeting 2016!
empowerment
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By v4wModerator
Artwork created by a participant in the Art Therapy workshop at Annual Meeting 2016!
inspiration
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By v4wModerator
Drawings of superheroes created by women in the Art Therapy workshop at Annual Meeting
empowerment
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By v4wModerator
Superheroes created by women at the Art Therapy workshop during Annual Meeting 2016!
Inspiration
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By v4wModerator
"If you could be a superhero who would you be? What superpower would you have?"
Licensed…
motivation
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By v4wModerator
Yesterday, July 21, 2016 kicked off the National Hemophilia Foundation's 68th Annual Meeting!…
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By Steps for Living
For more information and resources on workplace issues and living with a bleeding disorder,…
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By Steps for Living
For more information on VWD and other bleeding disorders, please visit Steps for Living!
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By agregory
"Grief is the rope burns left behind when what we have held most dearly is pulled out of reach,…
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By ablong14
Growing up, I thought everyone’s father infused. By the age of 7, I knew that was not the case.…
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