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Real questions from women in the community, answers by medical professionals.  If you would like to submit a question, please click here.  Please note that NHF under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.

Anonymous's picture
By Anonymous
I'm severe factor 7 deficient suffering from arthritis pain in left knee and both ankles. Is there any way to reduce pain rather than any surgical procedure as i can't afford or get factor for free.
Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk…
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Anonymous's picture
By Anonymous
Factor IX- Severe runs in my family and I was diagnosed with FIX mild. What concerns should I have for getting pregnant. Risks to me or to my child that may or may not have hemophilia or bad. (My family has both)
Hemophilia B (FX IX) occurs in 1 in 25,000 boys. The severity type is associated with the inherited…
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Anonymous's picture
By Anonymous
I was wondering if the scholarship application was still available and could someone with Factor V Leiden apply. Thank you.
Currently, there are no Victory for Women scholarship opportunities. The National Hemophilia…
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By Doreen Rousseau-Purdy
Do symptomatic carriers continue to have periods after menopause?
Being a carrier does not affect menopause. If one uses hormonal therapies, withdrawal bleeding from…
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By Sarah Roy
I just got put on stimate for my heavy menstrual cycle, i needed to use it twice in a 12 hr time due to heavy bleeding, Is this ok or when I go back to my hematologist in 6 months is their a stronger spray? or more options?
It's important that you bring any concerns or questions about your treatment to your hematologist,…
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Anonymous's picture
By Anonymous
I am a symptomatic carrier with easy bruising, a hisory of severe menorrhgia & chronic anemia, and a hemarthosis after a minor knee injury. I avoid aspirin and NSAIDs--do I need to?
Good question. The term 'symptomatic carrier' is broad, and can characterize hemophilia A and B…
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Anonymous's picture
By Gush-N-Hush
I am a woman with a bleeding disorder. I was prescribed osteoporosis RX by infusion at the hospital every six months. I have a history of joint pain, bruising, and nosebleeds while on other osteoporosis RXs. Is it safe to take?
Osteoporosis is defined by a severe reduction in bone mineral density (BMD) predisposing to…
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By Dr. Expert
As you pass on a changed gene to a child does it change in severity?
The pathogenic variant does not change over time but in VWD there is significant expressivity and…
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Anonymous's picture
By Anonymous
Is it safe for a woman with Factor VII deficiency 17% to get pregnant?
It is safe, but would require high-risk obstetrics to be involved since the FVII level is below…
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By Dr. Expert
Is there a way to recognize bleeds in the internal organs; brain, stomach, kidneys?
Often times bleeding in organs may be difficult to recognize as it may manifest as nausea,…
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