Your Questions

Real questions from women in the community, answers by medical professionals.  If you would like to submit a question, please click here.  Please note that NHF under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.

Gush-N-Hush's picture
by Gush-N-Hush
August 21, 2018
I am a woman with a bleeding disorder. I was prescribed osteoporosis RX by infusion at the hospital every six months. I have a history of joint pain, bruising, and nosebleeds while on other osteoporosis RXs. Is it safe to take?

Osteoporosis is defined by a severe reduction in bone mineral density (BMD) predisposing to...

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Gush-N-Hush's picture
by Gush-N-Hush
August 21, 2018
I am a woman with a bleeding disorder. I was prescribed osteoporosis RX by infusion at the hospital every six months. I have a history of joint pain, bruising, and nosebleeds while on other osteoporosis RXs. Is it safe to take?

Osteoporosis is defined by a severe reduction in bone mineral density (BMD) predisposing to...

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Dr. Expert's picture
by Dr. Expert
May 11, 2018
As you pass on a changed gene to a child does it change in severity?

The pathogenic variant does not change over time but in VWD there is significant expressivity...

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Anonymous's picture
by Anonymous
April 25, 2018
Is it safe for a woman with Factor VII deficiency 17% to get pregnant?

It is safe, but would require high-risk obstetrics to be involved since the FVII level is below...

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Dr. Expert's picture
by Dr. Expert
March 16, 2018
Is there a way to recognize bleeds in the internal organs; brain, stomach, kidneys?

Often times bleeding in organs may be difficult to recognize as it may manifest as nausea,...

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Dr. Expert's picture
by Dr. Expert
March 09, 2018
What can women do to prepare for lab testing/getting lab work to ensure we get test results? Should we not do lab testing immediately before or after menses? Are there foods we should avoid?

It is possible that in the first few days of a woman's cycle the VWF levels are lowest, but this...

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Rosi Montanez's picture
by Rosi Montanez
March 08, 2018
I do not have hemophilia but am a carrier for type A, severe. I am thinking of getting a tummy tuck but am wondering if being a carrier would greatly increase the risk of the surgery?

So the nomenclature is important before recommending treatment. There are hemophilia A carriers...

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Anonymous's picture
by Anonymous
March 02, 2018
Is Von Willebrand's often missed by hematologists? My hematologist says I don't have VWD because my VWD test results came back normal, but I've read that anxiety and birth control pills can increase the amount of VWD factor.

It is not as difficult to diagnose type 2 VWD or type 3 VWD and severe type 1 VWD as the levels...

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Dr. Expert's picture
by Dr. Expert
March 02, 2018
Is there a difference implanting an IUD in a girl/woman who hasn’t had a baby versus a woman who has a baby?

There is no contraindication related to placement if there has been a recent delivery of a child...

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Dr. Expert's picture
by Dr. Expert
February 09, 2018
Will I Be Safe From Bleeds if I Avoid Having Penetrative Sex?”

Sexual activities other than penetrative sex may be...

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